News & Events
PWS Video from Mayim Bialik, PhD
Mayim Bialik plays the role of a neuroscientist on the hit comedy show “The Big Bang Theory”, and in real life actually holds a doctorate in Neuroscience from UCLA. In fact, Mayim wrote her thesis on Prader-Willi Syndrome.
Along with PWSA (USA), the Richard de Lone Special Housing Project is proud to present this great video to our amazing community. Please feel free to share this to your friends and family!
Final plans are coming together for the 2nd Annual RDSHP Build-A-Community Benefit Concert. Soon we’ll be announcing a mid-June event date at the Sweetwater Music Hall in Mill Valley, CA. Stay tuned for details on what promises to be another stellar evening of world class musical entertainment!
1st Annual Build-A-Community Benefit
On Wednesday April 29th, 2015 Hall of Fame Inductee Elvin Bishop, and Special Guest Bonnie Raitt performed an intimate benefit show to a packed Sweetwater Music Hall crowd. The invitation-only event included a gourmet dinner by Chef Gordon Drysdale, a fabulously fun Live Auction wtih Chad Carvey, and an incredible musical performance from Elvin, Bonnie, and the band! Everyone, and I mean everyone, had a great time. Aaron, general manager at the Sweetwater, told us that it was probably the best show that they have had at the Sweet! Elvin and the band had a great time. Bonnie had a great time, and was so giving and grooving and generous to our cause. And everyone was beautiful, thank you ALL!
Excerpt from “Food is a Death Sentence for these Kids”
By KIM TINGLEY
New York Times Magazine
Rhoda is 39, an optimist with a self-effacing sense of humor and a bright, vulnerable smile. All her life, food has meant joy and, in times of trouble, comfort. Denying her daughter a treat when she was about to leave her for the first time, somewhere far from home, felt like denying her solace.
She feared that she was failing Rachelle.
Yet she was convinced that without intervention, the way she was breathing, she would die before Christmas.
Richard de Lone Special Housing Project Retreat
The retreat was all we could have hoped for — a wonderful gathering of great thinkers, and a great success. The result is that we now have a plan and a timeline for expanding our board, increasing our fundraising, and finalizing our vision. We have added two wonderful directors to our board, Beverly Butler from Wells Fargo, and Steve Senk from Second Octave Talent. We are currently working on a RDSHP Springtime Gala at the Sweetwater Music Hall in April to help secure the funds we need to stay on track, and put the shovel in the dirt by this fall. We are looking at prospective locations with the advice of our esteemed Advisory Board member, Bruce Dorfman, and have garnered the pro bono legal assistance of Anna Shimko of Burke, Williams, and Sorenson to help us negotiate the treacherous waters of land use and zoning issues.
We are terribly saddened by the passing of the great Dan Hicks, musical genius and friend, whose performance at the 8th Annual Richard de Lone Benefit Concert was one of the highlights of a fabulous evening.
Rest in peace, Dan…